FOLLOW US: Facebook Twitter YouTube NKF COMMUNITY: 220 MEMBERS TO DATE
About the Pediatric Neurosurgery Fund
 
 
> Great Sites
> Good Reads
GREAT SITES

The following websites are a few of the very valuable resources for patients and families available on the internet. As with any online resource, use your judgment on the information online.

About.com: Special Needs Children: This is a good site to begin.
http://specialchildren.about.com

Alberta Health Services: Main website with links to many important clinics, services, and resources.
http://www.albertahealthservices.ca

Apps for Children With Special Needs: Many apps available aren’t just for fun but specifically designed for making life easier for people with special needs.
http://specialchildren.about.com/od/equipment/tp/featureapps.htm

Boundless Playgrounds: Their mission is to create a world where ALL children have the opportunity to gain developmental and health benefits derived from unstructured play in an inclusive environment.
http://www.boundlessplaygrounds.corg/

Brave Kids: This excellent site is designed to help children with chronic, life-threatening illnesses and disabilities by connecting them to services and resources.
http://www/bravekids.org/

Care Notebook Forms and Documents: These forms have been designed by parents-for-parents who have children with medical issues. It offers a guide to keeping track of medical appointments, tests, and other important information.
http://www.cshcn.org/download-documents

Developmental Delay: Think of all the skills children have to learn when they come into the world. Here is a fact sheet that outlines some basic parameters of developmental milestones in childhood.
http://nichcy.org/Disabilities/Specific/Pages/DD.aspx

DREAMMS for Kids: This site is dedicated to increasing the use of Assistive Technology for children.
http://www.dreamms.org/

Easter Seals: They focus on the needs of infants and toddlers with disabilities.
http://www.easterseals.com/site/PageServer?pagename=ntl_early_intervention

8 Tips for Moms of Special Needs Children: Tips and recommendations from a mom who has a special needs child.
http://www/associatedcontent.com/article/181662/8_tips_for_moms_of_special_needs_children.html?cat=25

Exceptional Parent: Offers practical advice and emotional support to families of children and adults with disabilities and special needs.
http://www.eparent.com/index.asp

Families with Special Needs: Caregiving Tips:  Offers general caregiving tips and links to information for children and adults.
http://www.cdc.gov/family/specialneeds/

Fathering Special Needs Children: Helping fathers to meet the challenges with courage and ingenuity when raising a child with special needs.
http://www.fatherwork.byu.edu/specialNeeds.htm

Fathers Network: Provides current information and resources to assist all families and care providers involved in the lives of children with medical needs.
http://www.fathernetwork.org/

Grandchildren With Special Needs: 10 Practical Travel Tips: Don’t leave home without reading these pointers.
http://www.grandparents.com/gp/content/travel/travel-tips/article/grandchildren-special-needs-travel-tips.html

Glossary: An extensive list of commonly used acronyms and terms.
http://www.cshcn.org/glossary

Helping Siblings of Children with Disabilities:  Acknowledges and discussed sibilings’ feeling and emotions with a brother or sister with a disability.
http://raisingchildren.net.au/articles/disabilities_helping_siblings.html/context/1000

Hydrocephalus:  A great website that sheds lights on the children affected by hydrocephalus.
http://www.hydrocephalus.org

Including Your Child:  All children can succeed with the right support. This is a booklet that covers the first 8 years.
http://www2.ed.gov/pubs/parents/Including/intro.html

Kids With Cancer Society:  A valuable site that every child and parent affected by pediatric cancer should visit.
http://www.kidswithcancer.ca

Make A Wish Foundation: Granting wishes to children with life threatening medical conditions to enrich the human experience with hope, strength, and joy.
http://www.makeawish.ca

Need a Laugh: Sometimes you just have to see the humor in the things that happen to kids.
http://specialchildren.about.com/od/needlaugh/Need_a_Laugh.htm

Parents Helping Parents: A Canadian non-profit community-based, parent-directed family resource.

Recommended Child Care Health and Safety Resources – American Academy of Pediatrics.
http://www.healthychildcare.org/PDF/Health&SafetyResources.pdf

Shriners Hospitals for Children: Dedicated to improving the lives of children by providing specialty pediatric care, innovative research and outstanding teaching programs.
http://www.shrinershq.org/Hospitals/Main/

Special Olympics: Dignity, acceptance, and a chance to reach one’s potential – these are human rights worth promoting for everyone.
http://www.specialolympics.org/

Starlight Foundation Canada: Providing love, care, and support for children facing life-changing injuries or medical conditions. What makes them unique is that they are there for the entire journey—from the emergency room to recovery.
http://www.starlightcanada.org

Stollery Children’s Hospital Foundation:
http://www.stollerykids.com

Tips for Grandparents:  Informs grandparents on how they can best help their children and grandchildren.
http://www.ldonline.org/article/6058